well hello everyone, as everyone might already know, and others will soon find out, my
family and I are in and out of the hospital, and the ronald mcdonald house. Le me start
from the beginning, please be patient, as im not a good writer, not computer literate,
and this would be the last thing i ever thought i would be doing. But im here now so lets
get started, from the beginning. alittle over a month ago, i took my 2 girls to the
pediatrician, for a regular checkup, bloodwork, My eldest christina whos 9 has some
issues, like epilepsy, add, asthma, excema. my youngest sophia at 32 months never
had any problems, other then afew colds, small virus, normal kids illnesses, nothing
major. well we got a call about 2 days later saying christinas tests shows abnormal
liver, and sophia was anemic, and needed iron meds, to come back 2 days later, we did
that, and when dr mady saw us from our neighborhood medical, she said she was
concerned about sophia, i told her yes, i know she needs iron medication, she said no,
its more then that, all her levels are low, white blood cells, red blood cells, platelets,
hemoglobin, but its most likely a mistake, we will repeat test in 2 days, and see, we did,
and numbers came back ower, we did again, after 3 days, and lower, then again in 3
days and lower. she sad sophia might have leukemia, i was in shock, disbelief, she
made an appt for us to come see the specialist at shneiders hospital on the 21st of july,
and gess what were still here. After tons of tests, which are still not over, we now know,
she has advanced aplastic anemia. me, my husband, and my 2 girls, have been living
what seems a horrible dream, for over a month. my poor baby has been through so
much, 3 bone marrow biopsies, and we had to do so many because they couldnt get
enough bone marrow from her. dr showed us pictures of the biopsy, and were suppose
to have 90 percent bone marrow, and she has close to 10 percent. she also had 2
blood transfusions, they are trying not to give her to many transfusions, as her body
might reject whats needed, in the future. we also found out this in not genetic, she has
no chromosomal issues, and we just found out her big sister christina is not a match to
be a bone marrow donor. we are all at the ronald mcdonald house now, and going
every 2 days to get her blood taken to see her numbers, this is her second time she is
at the house, first time she was discharged from the hospital for 3 days, then was
rushed to er at night, and was in isolation for over 5 days, because she had something
that started off like hives, and spread, and turned, multiforming. she looked like
someone through acid on her. she was given benadryl, which she had an adverse
reaction to and would have rages, and horrible tantrums, for about 3 days, until we
figured out what it was. so in between all this, and not having any more good veins
because they all were blown out from all the ivs, picture a team of 5 trying to find a
good vein for over 1 hr, and shes punctured over 15times. i keep being told this will be
a long journey, a hard journey, and this is just the beginning. im sorry im writing all this,
but it took a while to start this website, and i am writing for all missed times. there are
more things, that i didnt write, but this is a start. thanks, for all your good thoughts, your
prayers, are what keep me, and my family going. please feel free to send me a note,
thought, prayer, i feel like im more into faith at this time, and thats what keeps me
going. thanks again for being with me through this hard time. catherine-mom of 2 girls
family and I are in and out of the hospital, and the ronald mcdonald house. Le me start
from the beginning, please be patient, as im not a good writer, not computer literate,
and this would be the last thing i ever thought i would be doing. But im here now so lets
get started, from the beginning. alittle over a month ago, i took my 2 girls to the
pediatrician, for a regular checkup, bloodwork, My eldest christina whos 9 has some
issues, like epilepsy, add, asthma, excema. my youngest sophia at 32 months never
had any problems, other then afew colds, small virus, normal kids illnesses, nothing
major. well we got a call about 2 days later saying christinas tests shows abnormal
liver, and sophia was anemic, and needed iron meds, to come back 2 days later, we did
that, and when dr mady saw us from our neighborhood medical, she said she was
concerned about sophia, i told her yes, i know she needs iron medication, she said no,
its more then that, all her levels are low, white blood cells, red blood cells, platelets,
hemoglobin, but its most likely a mistake, we will repeat test in 2 days, and see, we did,
and numbers came back ower, we did again, after 3 days, and lower, then again in 3
days and lower. she sad sophia might have leukemia, i was in shock, disbelief, she
made an appt for us to come see the specialist at shneiders hospital on the 21st of july,
and gess what were still here. After tons of tests, which are still not over, we now know,
she has advanced aplastic anemia. me, my husband, and my 2 girls, have been living
what seems a horrible dream, for over a month. my poor baby has been through so
much, 3 bone marrow biopsies, and we had to do so many because they couldnt get
enough bone marrow from her. dr showed us pictures of the biopsy, and were suppose
to have 90 percent bone marrow, and she has close to 10 percent. she also had 2
blood transfusions, they are trying not to give her to many transfusions, as her body
might reject whats needed, in the future. we also found out this in not genetic, she has
no chromosomal issues, and we just found out her big sister christina is not a match to
be a bone marrow donor. we are all at the ronald mcdonald house now, and going
every 2 days to get her blood taken to see her numbers, this is her second time she is
at the house, first time she was discharged from the hospital for 3 days, then was
rushed to er at night, and was in isolation for over 5 days, because she had something
that started off like hives, and spread, and turned, multiforming. she looked like
someone through acid on her. she was given benadryl, which she had an adverse
reaction to and would have rages, and horrible tantrums, for about 3 days, until we
figured out what it was. so in between all this, and not having any more good veins
because they all were blown out from all the ivs, picture a team of 5 trying to find a
good vein for over 1 hr, and shes punctured over 15times. i keep being told this will be
a long journey, a hard journey, and this is just the beginning. im sorry im writing all this,
but it took a while to start this website, and i am writing for all missed times. there are
more things, that i didnt write, but this is a start. thanks, for all your good thoughts, your
prayers, are what keep me, and my family going. please feel free to send me a note,
thought, prayer, i feel like im more into faith at this time, and thats what keeps me
going. thanks again for being with me through this hard time. catherine-mom of 2 girls
